Fragile X is not a code name for someone I was in a relationship with. It’s a syndrome. Don’t feel bad, I didn’t know what the heck it was either. Nor did my sister when her 17-month-old son was diagnosed with it. Now hold that thought—we’ll come back to this…
Presented with the opportunity to submit a blog entry at work, I pondered a vast array of potential topics. I thought a lot about blogs themselves. I thought a blog (entry) about blogs was an interesting approach. I jotted down a list of blog-related questions I had, thinking they might send me down an insightful path…
How many are there? How many are focused on healthcare? What’s the official definition of a blog? When was the first blog created? What are the Top 10 blogs? What do people most commonly blog about?
I found answers to all of my questions and then some. The blog statistics are staggering.
There are between 152 million and 230+ million in total (although I was unable to find exactly how many focus solely on healthcare). The term “web log” was coined by Jorn Bargeron December 17, 1997. The short form, “blog,” was coined by Peter Merholz, who jokingly broke the word weblog into the phrase we blog in the sidebar of his blog Peterme.com in April or May of 1999. There’s a lot of debate about the Top 10 blogs, and there are many Top 10 lists of blogs organized by different topics: http://www.blogs.com/topten/
Now for the most staggering statistic: I read that there is a new blog created somewhere in the world every ½ of a second. That means there are 172,800 blogs added to the blogosphere every day. And apparently 409 million people view 14.7 billion pages of blogs, each day!
There is no topic you can think of that you will not find a blog dedicated to. Try it. I did.
My blogstorming then led my brain to think about blogs that inspire me. That was easy. The most inspiring blog I’ve ever come across is penned by my very own sister, Cara. Cara has endless inspiration for her blog. My nephew Hayden is Cara’s “supermodel-esque son who just happens to have a genetic disorder which affects his brain.” This brings us back to the real matter at hand—Fragile X and raising awareness of it.
As the parent of an almost 9-year-old with Fragile X, my sister believes there are two kinds of people in this world: those who know what Fragile X syndrome is and those who do not. Hayden’s milestones followed a timeline of sitting up when most kids crawl, crawling when most kids walk, and walking when most kids begin toilet training. At 17 months, a blood test confirmed Fragile X syndrome. Hayden has learning difficulties, exhibits behavioral challenges, sensory issues, hyperactivity, and also…an unbelievable memory, a charismatic personality, and his most prominent feature is definitely his smile.
Cara’s blog is “awareneXs”—spelled with an X, because that’s what she wants people to become aware of. Read more about the origination of the blog, and Hayden’s diagnosis, here: http://awarenexs.blogspot.com/2011/05/why-may-of-2011.html.
So, challenged with the question of what to blog about, I take the opportunity to raise the awareness of Fragile X, and introduce you to my amazing nephew Hayden. If you’re not already part of those 409 million people who view blogs every day, this one might make you part of the statistic. At a minimum, it will swing the pendulum my sister sees a bit more toward the side of “people who know what Fragile X syndrome is.”
Read more about Fragile X and Hayden at http://awarenexs.blogspot.com/.
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